Our Vision: A Rosie Place is a home where caring and supportive people celebrate the gift of life, embrace human diversity, and empower families of medically fragile children.
Our Mission: We will provide a safe and nurturing haven for medically fragile children while giving family members periods of relief from the demands of full-time caregiving.
A Rosie Place is an advocacy community of compassionate professionals - caring business men and women, lay persons, parents and youth - motivated by an unwavering mission to embrace and empower medically fragile children and their families. Our services incorporate a family-centered philosophy, the hallmark of our vision.
A Rosie Place was designed and fashioned as a safe HAVEN, a warm and welcoming "home away from home." We envision becoming the leading center for fragile children in Indiana and trust that parents will identify our home as theirs, acknowledge A Rosie Place community as extended family, and recognize our services as an indispensable element of their community support system.
Why A Rosie Place?
A message from parents of medically fragile children.
We all want the best for our children. For most parents, that means good friends, a good education, and good health. Parents of medically fragile children set the bar differently. We want our sick or injured children to be comfortable, perhaps to recognize us, and simply to live happily until tomorrow.
Some of us began our journey with a medically fragile child at the hospital when he or she was born. Others endured the shock of a healthy toddler suddenly brain-injured after a fall into a pool, or a teenager paralyzed from a car accident. Whatever the cause, our lives changed forever. Procedures, medications, machines and therapies are everyday occurrences. We are busy repairing our relationships frayed by these circumstances, while trying to make ends meet in the face of high medical costs.
Without some type of out-of-home care, the unrelieved stress of caring for a medically fragile child tears at the fabric of our families. We have hope, however, that through A Rosie Place we will once again enjoy some of life's everyday gifts.
Real Examples of Families who Need A Rosie Place
2 year old male born at 26 weeks gestation, discharged from hospital on a ventilator after 10 months of care in Neonatal and Pediatric ICUs, died in a long term care facility unable to meet his complex needs, when his mother was in hospital delivering her next child. There was nobody capable of caring for him that week and A Rosie Place was not open yet.
The mother of a chronically ill teenage girl, with nobody else to care for her, postponed her own hysterectomy for 2 years, waiting for A Rosie Place to open so that her daughter could have competent, skilled care while her mother was in hospital.
A single father whose daughter has complex needs has been unable to maintain gainful employment because of the unpredictable needs of his daughter. A Rosie Place is able to provide care for a few days/ month to enable her father commit to certain work days.
3 year old boy with chronic respiratory failure and generalized muscular weakness who has a tracheotomy and mechanical ventilator was dropped off in a local hospital by his mother who admitted to being overwhelmed and unable to provide his care and take care of her 2 other children. Child Protective Service took custody, but it took many months to identify and train a foster parent who could take him home. This foster parent later adopted this child and he has not been hospitalized in 5 years.
11 year old boy with congenital brain disorder, tracheotomy and ventilator-dependence was cared for by his parents with help from home care nurses, while his parents tried to hold down jobs and raise 2 other sons. As his needs continued and availability of pediatric ventilator trained home nurses decreased, they were forced to place him in a long term care facility. He was transferred to Riley Children's Hospital multiple times within a 3 month period and the parents have since taken him back home with inadequate home nursing assistance and their marital relationship strained by the emotional toll of the difficult decisions made and their impact on the other boys.